IBI Therapy ~ To Be or Not to Be Redux

“I am happy and proud of his progress but disappointed in a system that makes promises about early childhood intervention but has children on wait lists for the therapy and programs that can help him.  ” … Source: IBI Therapy ~ To Be or Not to Be I wrote this 4 years ago after my…

Mother

  When I look over and see Johnny with a big smile on his face and laughing about something I think of “her.”   When Princess stops and looks at flowers at the neighbourhood corner store I think of “her” showing me how to plant flowers in the flower beds with “her.”   When Johnny…

How Do You Know If I Can Read?  REDUX

  or….The Argument For More Motor Speech Therapy.   Last year when Johnny was in Grade 2,  I wrote about how important it was for him to get more specialized speech therapy so that he can learn to read orally. How could he sound out letters orally if his motor speech delay literally made it…

It’s All In The Mess

I have this trick you see.  I know how hard my son has worked at school by the state his clothes or in this case the state of his boots.   When he was younger in kindergarten his hair would have paint or glue in it and his clothes would be stained with every art…

Showing What You Know

Every year I have to attend an official placement review committee (IPRC) meeting regarding Johnny’s status in special education.  Lots of good things were discussed but one thing really bothered me.  I was told that Johnny’s reading level is at around mid-Grade 1 level even though he’s in Grade 3.  I wanted to remind teachers…

Its All About How He Shows It

  What I have learned from my Autistic son from the time that he was a toddler to now (almost 9 and in Grade 3) is its all a matter of “showing what you know.”  It sounds simple doesn’t it?  Its like when you were in school and solving a math question and the teacher…

When I Just Wanted To Play Has Many More Meanings

That in a nutshell is how we help Johnny to move forward and for us as parents to be able to handle any challenges as we all move forward as a family.  We accept that he learns differently and sees the world from a different perspective and if we want to help him forward we…

A Little Busy Processing

Its just hard for him to try and process everything happening around him because the world feels so very hard sometimes. It was especially hard to process when he was younger.

5 Years Later Autism Spectrum Disorder

Today is World Autism Awareness Day and April is Autism Awareness  Acceptance Month.  It’s been 5 years since Johnny received his diagnosis that he had Autism Spectrum Disorder.  What a learning curve we have all been on.  What is Autism?  I like to think of it as a different way of thinking, being and processing because…

He Knows….

It took him many months to get used to the idea and be okay with it. He thought that if worked harder it would go away

The Boy On The Bus and His Mom Pt 4/4

  So it would have to happen that we would meet. It was an extremely cold night for the parent teacher conferences so I was happy to wait inside for my husband to arrive.  One of the EA’s that I know that works in the Multiple Exceptionality room spots me waiting in the hall.  “Do you…

When Was He Ready? Does He Ever Get To Be Just A Child?

  When was he ready?  That is one of the questions I get asked often from people who have known Johnny for a long time or from others who have heard of the progress he has made.  I like to think that all children develop at their own pace and that any developmental guidelines are…

The Boy, The Bus and Me ~ Pt 3/4

A few weeks ago….. After writing a note to the Principal letting her know what amazing stuff was happening on the bus, I keep having the staff that work in the multiple exceptionality room (special resource or special needs classroom) come up and speak with me.  Yesterday when we were taking Johnny’s class to the…

More Boy On the Bus ~ Pt 2/4

Previously on “The Boy On the Bus,”….. Another morning getting on the school bus and another bright spot to start the day.  Johnny got on the bus first like he always does and greets his buddy Michael and heads to his seat.  But this morning,  John decided to reach out and grab my daughter Princess’s hand…

The Boy On the Bus ~ Pt 1/4

At the beginning of January after Christmas holidays,  an amazing thing happened on the morning school bus that I want to share. Its a story about never giving up on hope,  that all kids move forward and progress in their own way.  The following tale is very different from what happened 2 years ago on…

Thinking About the Sibling of an Autistic Child

The other day I was reading a blog post about a Mom’s very legitimate concerns about what Autism brings to the sibling of an Autistic  child.  I truly understood where she was coming from because it’s one thing as parents that we have the  responsibility for our children but what about siblings to each other?…

It Wasn’t What I Thought I Was Going To Be

  The day after my birthday and I have been left with a lot to think about.  I had lots of wonderful birthday wishes from friends and family from far and wide and local.  My husband decorated, got me much appreciated thoughtful gifts, lovely special cupcakes from the bakery, as a family we all went…

Ash Wednesday Redux

  “Johnny wants to read this on February 18th for Ash Wednesday in front of the school.   Can you practice with him till he has it down to a fine art please?” This is the text I received from Johnny’s teacher last year.  I was so surprised but immensely proud that he has decided to…

What Do You Feel Like? 

After the big Christmas school concert, we were collecting the kids and saying our good byes.  Johnny’s teachers and EA’s were there and getting him organized to go.  Johnny wanted to know what we were doing now and I said we needed to get some dinner for Daddy because he came straight from work to…

Social Communication Gap

When I started this journey with Johnny and Autism,  I was so wrapped up in the whole getting him to talk and to play with toys “properly”  that I think I put the social communication piece on the back burner.  I think I felt that if we could get talking started then the interactions would start….

Its Like Christmas Lights….

  One of the ways I try to understand the the neurological side of Autism is I think of Johnny’s brain having more wiring in his brain that has been activated then what is typical and it hasn’t naturally trimmed itself to just use essential parts.  The end result is that it was hard for…

When Everyone Is Not On Board

An early childhood educator told me this one very particularly frustrating day: “There are going to be well meaning professionals in your son’s life that will help him move forward and others who will only hold him back if you let them.   My advice to you is to keep the ones who “get” Johnny…

1-100 Totally Unassisted

When I opened up Johnny’s back pack this is what I found tucked inside. His EA (classroom support worker or para) had written across the bottom “totally unassisted.”  He wrote the numbers in sequential order from one to hundred all by himself in the tiny boxes that his teacher provided all by himself.  We were…

Dear Teachers….

  Dear Grade 3 Teachers, We wanted to let you know that Johnny is having a really hard time right now. He is experiencing a lot of anxiety and is very negative about going to school and just wants to stay home. We were expecting some of this the first week back but it’s continued…

Apples and Oranges to Tantrum or Meltdown 

If I put my children side by side you would immediately list off some differences.  Boy / girl, younger/ older, taller/ shorter, blond/ brown etc. When it comes to behavior they are very different again.  Is it a tantrum or is it something more?  So young but carrying such big emotions and still learning how…

Halloween Dance A Thon – Difference An Hour Makes

   This year since Halloween was on a Saturday that meant we would have two days of festivities which translates to an extra day of potential over stimulation. Friday the kids were suppose to wear their costumes at school and then in the afternoon there was a Dance-A-Thon where the kids were raising money to…

The Cat Came Back 

  A story from summer with a happy ending:)  The cat came back but not the very next day like the song says.  It turns out that he was just a few doors down from us stuck in a house on our street!   The after day we started coming to grips with the notion that he…

Visual Schedules and Why They Are Still Important

Last year in Grade 2 Johnny really “went with the flow” and followed along with the routines in the classroom.  He paid attention and watched his peers for clues on what to do next.  Is it recess time?  Is it lineup time? Is it reading time?  The Grade 2 teacher was very proud that he…

Back To School and The Battle of the Distracters

One month into school and things have been going well except for one thing.  Johnny trying to get used to the very busy schedule of Grade 3, the new teacher and classroom, and trying to become more independent. I was on twitter when I saw this great resource posted about BRAIN DISTRACTORS. One of the…