Opening The Book

The paliative care doctor that helped my Dad told me that children deal with grief like how you look at a book.  They sit down and open the book up and take a look for a little while and then close it and are done with that book for a while.  Last night Johnny opened…

Please allow me this moment

Yesterday. Please allow me this moment.  I wish I wasn’t having it but they do come.    Its how you feel when you take 3 steps forward and 2 steps back.  It’s the moment when you feel overwhelmed by the mushrooming appearance of behaviours that you thought you had already dealt with.  The exhilaration of…

Bad Dreams

Last night Johnny had a bad dream and was able to share that with us.  Was it only two years ago that he would wake up really upset and crying,  leaving us guessing and wondering is he sick, is he scared or was it a nightmare? Sometimes he would cry and cry for what seemed…

Step By Step…Repeat…Again

Over the summer we decided to help Johnny become more independent with his life skills and get him used to following visual schedules on his own. At school they want him to be able to follow a visual schedule regarding classroom activities without the help of his EA and also use visual schedules to gain…

I can’t believe he did this…..

We were leaving the fair when Johnny’s Daddy turned to me and said “I want to do THAT ride.  Can I?.”  Daddy quickly lets the children know and then quickly goes to get on THIS ride before we leave.  Johnny quickly hugs me and says “bye” and goes to follow Daddy.  He wants to do…

“I want to buy flowers for Grandpa”

“I want to buy flowers for Grandpa” Two years ago we were hoping and praying along with my Father who lived with us that Johnny would be able to say some words. We could only live in hope that one day we would hear his voice letting us know what was on his mind.  On…

Apraxia of Speech Therapy – PROMPT

A few weeks ago we got a call from a clinic that treats Apraxia of Speech in children that Johnny was now at the top of their very long waiting list and that we should bring him in for another assessment.  What a difference three months can make from our previous visit.  Read about the…

Tasting The Air

Three years ago we traveled back to the city I was born and grew up in that is nestled by the mountains and the ocean.  Johnny was two years old and at the time we knew he had developmental challenges in various areas but we did not know he had Autism. Johnny absolutely loved being…