The Winter Woods

  Above is a painting done by my son Johnny that he calls, “The Winter Woods.”  He has painted the stark, barren trees reflecting in the water of the frozen pond.  It is a reminder of the days we leave behind as Spring arrives.  He painted this the day we learned of the tragic loss of…

The Mountain Just Got Higher

  I am sad right now.  I am feeling discouraged right now.  The mountain is always in front of us but we climb anyway.  Advocacy for access to the curriculum despite a disability as a human right continues for our son.  We chip away and stand our ground as our son due to his own determination…

Ash Wednesday And The Little Boy Who Could

  One afternoon, four weeks ago, I get a text from Johnny’s EA (Educational Assistant) “Johnny wants to read this on February 18th for Ash Wednesday in front of the school, can you practice with him till he has it down to a fine art please?” I am a tad shocked and quickly text her back and…

Its All About The Cat

“I don’t want the cat sleeping on Mommy’s bed.  I don’t want the cat watching me get on the school bus.  I don’t want the cat going outside.  I don’t want the cat sleeping on my sister’s bed.   I don’t want the cat to go outside and go hunting.  I don’t want the cat…