Ballet Class to be or not to be

We need to change everything up and to also somehow get this ballet adventure back on its wheels so that we can navigate what’s happening with Johnny as well. THIS matters to him so we need to somehow make sure that it matters to all of us as a family. What’s hard sometimes is that…

Becoming The Big Brother

“This morning really early I heard our daughter saying “Johnny” really loud and I called out for her to back to sleep. I heard the flutter of little feet on the hard wood floor. She sleeps in a crib still. It seems that big brother wanted to play.” Originally posted on March 7 2012 Flash…

Math Eruption

In  Grade 2,  Johnny was struggling and didn’t like doing his Math work at school.  He did it but it took a lot of motivating.  He could do Grade 2 geometry and enjoyed measurements, and he enjoyed working on predicting patterns and sequences but the concepts of addition and subtraction were not working out for him.  He…

Turtle Trouble

“My turtle is not working.  Fix it Daddy.” Its 1:30am in the middle of the night and Johnny is in our room.  Like most parents the first thing that comes to our minds as parents is he’s having a nightmare or he’s feeling sick. Our minds race as we try to come out of a…

He’s got skills or is it the girl?

Yesterday while I was waiting to pick up Johnny  from school I hung out at the back of the classroom.  One of the Education Assistants wanted to share with me how amazing Johnny was today.  There was a Grade 1 student who visited the ASD classroom to see if it was the right fit for her…

5 Years Later Autism Spectrum Disorder

Today is World Autism Awareness Day and April is Autism Awareness  Acceptance Month.  It’s been 5 years since Johnny received his diagnosis that he had Autism Spectrum Disorder.  What a learning curve we have all been on.  What is Autism?  I like to think of it as a different way of thinking, being and processing because…

The Boy On The Bus and His Mom Pt 4/4

  So it would have to happen that we would meet. It was an extremely cold night for the parent teacher conferences so I was happy to wait inside for my husband to arrive.  One of the EA’s that I know that works in the Multiple Exceptionality room spots me waiting in the hall.  “Do you…

When Was He Ready? Does He Ever Get To Be Just A Child?

  When was he ready?  That is one of the questions I get asked often from people who have known Johnny for a long time or from others who have heard of the progress he has made.  I like to think that all children develop at their own pace and that any developmental guidelines are…

The Boy, The Bus and Me ~ Pt 3/4

A few weeks ago….. After writing a note to the Principal letting her know what amazing stuff was happening on the bus, I keep having the staff that work in the multiple exceptionality room (special resource or special needs classroom) come up and speak with me.  Yesterday when we were taking Johnny’s class to the…

More Boy On the Bus ~ Pt 2/4

Previously on “The Boy On the Bus,”….. Another morning getting on the school bus and another bright spot to start the day.  Johnny got on the bus first like he always does and greets his buddy Michael and heads to his seat.  But this morning,  John decided to reach out and grab my daughter Princess’s hand…

The Boy On the Bus ~ Pt 1/4

At the beginning of January after Christmas holidays,  an amazing thing happened on the morning school bus that I want to share. Its a story about never giving up on hope,  that all kids move forward and progress in their own way.  The following tale is very different from what happened 2 years ago on…

When Everyone Is Not On Board

An early childhood educator told me this one very particularly frustrating day: “There are going to be well meaning professionals in your son’s life that will help him move forward and others who will only hold him back if you let them.   My advice to you is to keep the ones who “get” Johnny…

Past Triumphs….Let The Words Begin

  Some children who are Autistic are verbal and others never become speakers.  This is one of the harder parts of being a parent raising a child on the spectrum.  As parents, we need to be able to communicate to our child as we raise them so being told during a diagnosis that your child…

Autism Symptoms Now….four years later.

Johnny is 7-1/2 years old now and we cannot believe that 4 years have passed already.  So many hours of speech therapy, OT therapy and then attending parent training courses as well.  I want to make it clear that my son will always be Autistic and as parents we have come to accept that.  So when…

Flashback 4 Years…Autism Symptoms Then

Since its  officially Autism Awareness month and there might be parents reading my blog who are either beginning their journey raising an Autistic child or they are curious and want more information, I thought I’d share this resource material.  Just like every child is born different and are individuals, its is the same for people that…

He was there even when I was not sure he was

  It’s World Autism Awareness Day and this is Autism and acceptance to me and my family I confess that there were times I was not sure if my Autistic child understood what was happening?  When a child is non-verbal and isn’t acting the expected way that a child would about something,  many times there is…

Ash Wednesday And The Little Boy Who Could

  One afternoon, four weeks ago, I get a text from Johnny’s EA (Educational Assistant) “Johnny wants to read this on February 18th for Ash Wednesday in front of the school, can you practice with him till he has it down to a fine art please?” I am a tad shocked and quickly text her back and…

He’s Never Been Shy

Psst…I have a little secret I’d like to share with you.  Johnny has never been a shy little boy.  Our nick name for him  is “Rock Star” because he loves to be the centre of attention.  Why were people assuming he was shy because he would not speak to them? When your child doesn’t say…

Just Like The Grade 2’s

  I hear the sound of laughter and excitement and the front doors of the school open and child after child follows their teacher outside for recess.  I hold my breathe and as promised,  I see him scampering threw the front doors of the school just like all the other grade twos ahead of him….

Adamant About Math

I received an email from Johnny’s Special Education teacher yesterday who teaches him in the Autism ISP room. “Yesterday for Math,  Johnny was ADAMANT that he wanted to stay in Mrs. ********’s class for Math.  Her and I looked at each other and she said to Johnny that if he was quiet, listened and participated he…

Halloween Past Present and Future

  I want to BE a firetruck Mommy.” Johnny has always loved firetrucks since he was around two years old.  If we were at a playgroup he would zero in on the only firetruck in the whole room.  If we were visiting a farm with a big giant sandbox filled with diggers and dump trucks,…

Cowboy and Jack O Lanterns

Originally posted on Everything Under the Sun:
This was the first year that I can whole heartedly say that Johnny REALLY enjoyed Halloween.  He had a big smile plastered on his face and he didn’t seem full of anxiety like he usually does when it comes to trick or treating.  When he got off the…

The Long Bus

  Today was the first day that Johnny gets to ride the long school bus like all the other children at his school.  Why is this big thing? Well the small school buses are usually used in our district to transport special needs children and children in special programs  to pick them up and drop  them off…

Surfers Healing ~ First time Surfing

  On August 18th 2014, my son Johnny had an amazing opportunity along with a whole bunch of other Autistic children to  go out on the waves and try surfing with a professional surfer.   He had tried paddle boarding last summer when Surfers Healing came to our home city last year which was a nice…

Happy Birthday My Little Guy

  Johnny turned seven years old last weekend. This year he told me that he wanted a birthday party, cake, decorations and games like I did for his little sister’s birthday. When his sister asked him who he wanted to invite he said “you Princess are invited, Mommy and Daddy and Grandma and Grandpa.” Princess…

Having One Perfect Day

We decided to take Johnny on a big field trip and do something he’d really love to try. “Mommy I want to surf.” So today in Wrightsville Beach in North Carolina he got to try surfing for the first time. He loved it. Surfers Healing is fantastic because when you are autistic you hear so…

Let’s Have A Pretend Birthday Party

  “Let’s have a pretend birthday party.  I want to have a birthday party before bedtime with Daddy, Mommy and Princess.” Whose birthday is it? “It’s Mommy’s!” Johnny brought over the Melissa and Doug birthday block cake and placed it on the table. Then he set the table by getting  little plastic plates and put…

Reading….bring it on

Originally Written Last Year ~ Senior Kindergarten Year* When Johnny came home from school and we opened his school bag he was eager to look in his backpack.  Johnny was looking for the next reading book that he gets to bring home from school every week. He is so excited about learning to read. Johnny’s…

Look What I Found In His Back Pack!

Look what was inside Johnny’s school bag today!!! An iPad to use at school!!!  2 years of advocating relentlessly to the school, Autism School Services, and to the School Board with Daddy attending monthly Special Services School Board meetings for one year getting to know department chiefs by their first name and making sure they knew…