Why Are You Crying? Re-dux

Source: Why Are You Crying? *Originally written and shared on January 28 2013 when Johnny was 5 years old and was essentially non-verbal. Why are you crying?  Why are you sad?  I see tears and when we have tears it means we are sad.  Who made you sad?  Did somebody make you sad? Did somebody…

Leading Each Other Out of the Dark

“Sitting back and watching this important friendship bloom in the face of Autism is absolutely heaven.”  * March 20 2014 “I never know when I am going to get the unexpected appearance of maturity or movement forward but when it happens I savour it for how special it is.” One of the best things I…

Ballet Class to be or not to be

We need to change everything up and to also somehow get this ballet adventure back on its wheels so that we can navigate what’s happening with Johnny as well. THIS matters to him so we need to somehow make sure that it matters to all of us as a family. What’s hard sometimes is that…

Not Seven….

      What is it about certain numbers?  He just doesn’t like certain numbers and if he hears them he will interrupt.  At first I would just try to ignore it and hope that it would be something that would pass and not become something that would embed it self into our daily lives….

Becoming The Big Brother

“This morning really early I heard our daughter saying “Johnny” really loud and I called out for her to back to sleep. I heard the flutter of little feet on the hard wood floor. She sleeps in a crib still. It seems that big brother wanted to play.” Originally posted on March 7 2012 Flash…

Pumpkin Patch Treasure Re-dux

  Somethings never change and Johnny’s love for pumpkins other then orange still has not.    Johnny  might say that he doesn’t like the word different but instead of picking orange pumpkins at the pumpkin patch,  he has to be on the lookout for the only green one.  He is a little boy on a mission….

She Ignored Me

At the beginning of October Johnny got into a last minute spot into a Social Skills Friendship building group for Autistic children 8-9 years old.  Having friends is a big thing for Johnny so he was eager to do this.   We thought it was important because initiating conversations with his peers seems to be…

Hiding Autism

    What if you were afraid to let anyone know that your child has Autism?  What if the family doctor says:   “He can speak, he can read really well, he is very smart and intelligent but just flops and has some social skill and sensory issues but otherwise no one would really know…

Turtle Trouble

“My turtle is not working.  Fix it Daddy.” Its 1:30am in the middle of the night and Johnny is in our room.  Like most parents the first thing that comes to our minds as parents is he’s having a nightmare or he’s feeling sick. Our minds race as we try to come out of a…

Stop That Lower Lip

      I like to be overly expressive with my facial cues so that Johnny can learn to quickly and correctly identify what I am feeling so that he can do that with friends and family and get better at social situations.  One of things I do is if I’m sad or I am…

He’s got skills or is it the girl?

Yesterday while I was waiting to pick up Johnny  from school I hung out at the back of the classroom.  One of the Education Assistants wanted to share with me how amazing Johnny was today.  There was a Grade 1 student who visited the ASD classroom to see if it was the right fit for her…

Mother

  When I look over and see Johnny with a big smile on his face and laughing about something I think of “her.”   When Princess stops and looks at flowers at the neighbourhood corner store I think of “her” showing me how to plant flowers in the flower beds with “her.”   When Johnny…

5 Years Later Autism Spectrum Disorder

Today is World Autism Awareness Day and April is Autism Awareness  Acceptance Month.  It’s been 5 years since Johnny received his diagnosis that he had Autism Spectrum Disorder.  What a learning curve we have all been on.  What is Autism?  I like to think of it as a different way of thinking, being and processing because…

He Knows….

It took him many months to get used to the idea and be okay with it. He thought that if worked harder it would go away

More Boy On the Bus ~ Pt 2/4

Previously on “The Boy On the Bus,”….. Another morning getting on the school bus and another bright spot to start the day.  Johnny got on the bus first like he always does and greets his buddy Michael and heads to his seat.  But this morning,  John decided to reach out and grab my daughter Princess’s hand…

The Boy On the Bus ~ Pt 1/4

At the beginning of January after Christmas holidays,  an amazing thing happened on the morning school bus that I want to share. Its a story about never giving up on hope,  that all kids move forward and progress in their own way.  The following tale is very different from what happened 2 years ago on…

Thinking About the Sibling of an Autistic Child

The other day I was reading a blog post about a Mom’s very legitimate concerns about what Autism brings to the sibling of an Autistic  child.  I truly understood where she was coming from because it’s one thing as parents that we have the  responsibility for our children but what about siblings to each other?…

It Wasn’t What I Thought I Was Going To Be

  The day after my birthday and I have been left with a lot to think about.  I had lots of wonderful birthday wishes from friends and family from far and wide and local.  My husband decorated, got me much appreciated thoughtful gifts, lovely special cupcakes from the bakery, as a family we all went…

Ash Wednesday Redux

  “Johnny wants to read this on February 18th for Ash Wednesday in front of the school.   Can you practice with him till he has it down to a fine art please?” This is the text I received from Johnny’s teacher last year.  I was so surprised but immensely proud that he has decided to…

What Do You Feel Like? 

After the big Christmas school concert, we were collecting the kids and saying our good byes.  Johnny’s teachers and EA’s were there and getting him organized to go.  Johnny wanted to know what we were doing now and I said we needed to get some dinner for Daddy because he came straight from work to…

Halloween Dance A Thon – Difference An Hour Makes

   This year since Halloween was on a Saturday that meant we would have two days of festivities which translates to an extra day of potential over stimulation. Friday the kids were suppose to wear their costumes at school and then in the afternoon there was a Dance-A-Thon where the kids were raising money to…

The Cat Came Back 

  A story from summer with a happy ending:)  The cat came back but not the very next day like the song says.  It turns out that he was just a few doors down from us stuck in a house on our street!   The after day we started coming to grips with the notion that he…

While we were away

Baptism, reading out loud in front of the school, making friends, First Communion, deciding that he wanted his own birthday party with school friends,  getting his invitations out, turning 8, going to New York City for a week, sitting through his first Broadway musical three hours in the theater at night, finishing Grade 2, speech…

What’s in a name?

  What’s in a name? that which we call a rose By any other name would smell as sweet; So Romeo would, were he not Romeo call’d, Retain that dear perfection which he owes Without that title. Romeo, doff thy name; And for that name, which is no part of thee, Take all myself.  Rom.        I…

Visual Memory and His Love of Giverny

For Autism Awareness Month, I wanted to share a story regarding Johnny being a visual learner and his incredible memory. The other day I saw some pictures on Twitter of Monet’s famous water lily paintings and Johnny was looking over my shoulder and said, “Mommy that’s Giverny.” I asked him, “Who painted those?” and he answered “Monet…

Special Message To My Son’s Teachers

  I wanted to take a moment and thank the educators  and professionals who have worked with my son and those who work with him today.   Some of you follow my blog to keep up on his progress and others might stumble upon my musings in a happy accident.  So thank you to wonderful and…

Autism Talent Evening for Autism Awareness

Last week as part of Autism Awareness Day,  there was a talent night highlighting what Autistic children can do and celebrating and nurturing talents at the school boards central office.  Some of Johnny’s paintings were displayed at the show.   He was so proud but wanted to get them back because he painted them for…

Past Triumphs….Let The Words Begin

  Some children who are Autistic are verbal and others never become speakers.  This is one of the harder parts of being a parent raising a child on the spectrum.  As parents, we need to be able to communicate to our child as we raise them so being told during a diagnosis that your child…

Autism Symptoms Now….four years later.

Johnny is 7-1/2 years old now and we cannot believe that 4 years have passed already.  So many hours of speech therapy, OT therapy and then attending parent training courses as well.  I want to make it clear that my son will always be Autistic and as parents we have come to accept that.  So when…

He was there even when I was not sure he was

  It’s World Autism Awareness Day and this is Autism and acceptance to me and my family I confess that there were times I was not sure if my Autistic child understood what was happening?  When a child is non-verbal and isn’t acting the expected way that a child would about something,  many times there is…