Why Are You Crying? Re-dux

Source: Why Are You Crying? *Originally written and shared on January 28 2013 when Johnny was 5 years old and was essentially non-verbal. Why are you crying?  Why are you sad?  I see tears and when we have tears it means we are sad.  Who made you sad?  Did somebody make you sad? Did somebody…

Autism In Big Flashing Neon Letters

This is  Autism Awareness Month and before we can look forward we have to take a look back.   Flashback 5 years ago today Autism won.   When I think about that day I was so frustrated because I was trying to desperately get our son Johnny into specialized speech therapy to get the speech going.     I…

Autism Checklist ~ What You Need To Know

  Awareness brings understanding and understanding brings compassion. Originally shared April 16 2012  Source: Autism Checklist ~ What You Need To Know April is Autism Awareness Month and I think its important for friends and family to know what the symptoms of Autism look like to place someone on the autism spectrum. Yes at one…

Tears For Recess

*tissue warning* Last year….. “I feel alone Mommy…..” “Mommy I am not sure I like the south yard anymore. “. Last spring,  Johnny found out that after Grade 2 he would move from the little kids yard to the big kids yard.  He was so exited and this would make his little sister sad and worried…

Leading Each Other Out of the Dark

“Sitting back and watching this important friendship bloom in the face of Autism is absolutely heaven.”  * March 20 2014 “I never know when I am going to get the unexpected appearance of maturity or movement forward but when it happens I savour it for how special it is.” One of the best things I…

Riding The Emotional Rollercoaster of Meltdowns and Autism

I have been noticing that many people find my blog as they try to learn more about Autism and particularly  about the differences between meltdowns and tantrums.    I shared a  blog post from  four years ago on March 20 2013 about a moment in one day and how hard it can be:  “There is…

Ballet Class to be or not to be

We need to change everything up and to also somehow get this ballet adventure back on its wheels so that we can navigate what’s happening with Johnny as well. THIS matters to him so we need to somehow make sure that it matters to all of us as a family. What’s hard sometimes is that…

After All Is A Name Important?

  It bothers me that Johnny never had a say in what he should be called at school.  I was told in Johnny’s Junior Kindergarten year that John was easier for him to learn to say, to spell, and for his peers to say but it won’t stick.  I was very uncomfortable with this but I…

Not Seven….

      What is it about certain numbers?  He just doesn’t like certain numbers and if he hears them he will interrupt.  At first I would just try to ignore it and hope that it would be something that would pass and not become something that would embed it self into our daily lives….

“I want to stay here” ~ Time To Go Back

“Mamma I want to stay here. Mamma I want to stay with baby. I done school.” It didn’t sound perfect but I understood what my little 4 year old boy was trying to convey to me.  School was hard.  Kindergarten was hard.  Being non-verbal in kindergarten was hard.  Being not understood at school was hard….

He’s a BAD boy

“He’s a BAD boy” the little girl in Johnny’s class says very loudly while we are all sitting around the lunch tables at the Pumpkin Patch farm. Silence. (…) Johnny is not doing these things just to be BAD. He is trying to communicate, get attention and sometimes he is stimming. It is time to…

Becoming The Big Brother

“This morning really early I heard our daughter saying “Johnny” really loud and I called out for her to back to sleep. I heard the flutter of little feet on the hard wood floor. She sleeps in a crib still. It seems that big brother wanted to play.” Originally posted on March 7 2012 Flash…

Is Your Daughter Autistic Too?

  Is your daughter autistic too? Now that’s a question to wake you up pretty fast on a Wednesday morning when you drop your kids off at school (….) What about Princess?  What do I teach her?  What if other children ask her questions about her brother?  What does she say?  I feel guilty putting this…

Love Me If I Am Purple

I’ve been thinking a lot about self care, loving oneself and self esteem and I keep thinking about how if you go through life finding so many situations confusing what does that do to your perceptions of who you are? It made me think about how at times my son expresses things he doesn’t like…

Pinning Down Autism

I think sometimes it’s hard pinning down what Autism looks like.   I remember when Johnny was two and he had lost the few words he could say and we were beginning to panic,  our family doctor kept saying we will have to get him evaluated for speech delay in a few months but don’t panic. “Sometimes boys…

Autism & Learning ~ A Handy Reference

I discovered this online credit to Online College.org *Please share* to spread awareness and acceptance Source: Autism & Learning ~ A Handy Reference

What if ?

What if when parents find out that their child had Autism that they heard this: You’ve done nothing wrong. You didn’t cause this. You haven’t failed your child. You were given an instruction manual for a Ford and your child is a Ferrari. So, congratulations! Your child is NOT fundamentally different from other children. You…

Autism Spectrum Disorder…What Happens Now?

re-post from my blog about what happened to us as parents when we received the diagnosis for our son and then the plan of actions we needed to come up with to help him.  Repost: http://wp.me/p1KVmo-c Originally written on January 11 2011~ It’s funny how in life how three little words can change your life forever. “I love you” “It’s…

Halloween Past Present and Future

  I want to BE a firetruck Mommy.” Johnny has always loved firetrucks since he was around two years old.  If we were at a playgroup he would zero in on the only firetruck in the whole room.  If we were visiting a farm with a big giant sandbox filled with diggers and dump trucks,…

Love Me If I Am Purple

    Over the last year Johnny has a had a “thing” about the way he looks.  “I want yellow hair Mommy.  I don’t like brown hair.  I want to pull my hair out. I want my  hair the colour of Mommy or Princess.”  Johnny was born with lots of pitch black dark as night…

Is A Name Important?

John or Johnny?  Princess, Johnny’s 3 year old little sister has been bringing this up a lot to me recently.  At her preschool some of the children class are calling her ***** and she has been telling her teachers and peers , “My name is Princess not *****.”  She has mentioned to me before when we have…

Happy Birthday

Yesterday my beautiful sweet boy “Johnny” who turned 6 years old. His Grandpa said it best the other day…. “I love your hugs Johnny because one hug from you is worth a 1000 hugs from other people.” Johnny is happy, determined, passionate, tenacious, stubborn, creative, industrious, relentless, silly, sweet, and caring. He also happens to…

What I’d like to hear the most

Originally posted on Everything Under the Sun:
What did you do at school today? Did you have fun? What made you laugh? What did you not like? Who are you friends with? Why are you sad when I ask this question? We always feel like we are starving for any scraps of info about what…

Johnny has come a long way….

Originally posted on Everything Under the Sun:
  ~ originally written August 2011 It’s been a long time since I wrote an update on our journey with Johnny. Special Pre-school: Johnny really enjoyed his time at the preschool we sent him to. They had volunteers working with him one on one everyday in a happy,…

An Innocent Question….do you want to play?

We were sitting at Johnny’s favourite spot in our neighbourhood, a plaza with a fountain and statue that he finds relaxing and peaceful.  We were approached by a little boy who says, “I know you.  You rode the school bus with me and you were in Mrs. …….. class.”  I had to get Johnny’s attention…

What Is It About Amusement Parks?

The need for speed, going fast, spinning, lights, colours, laughter and lots of movement. Even when he was a baby he loved being on the baby swings for an extended period of time and would cry if we took him out too soon.  We started taking Johnny on rides  at an amusement park when he…

Autism Checklist ~ What You Need To Know

  Awareness brings understanding and understanding brings compassion. April is Autism Awareness Month and I think its important for friends and family to know what the symptoms of Autism look like to place someone on the autism spectrum. Yes at one point our son did nearly all of this but with early intervention things are…

I am even more determined then ever…

  ~ “Johnny had an okay day. Johnny was very emotional, kept crying. Took him for walks and read him books which calmed him down for a bit” ~     This is what the EA wrote in Johnny’s daily communication book on Thursday about his morning at school. Wednesday night when we tucked Johnny in he was…

“I want to stay here” ~ Time To Go Back

Like so many other parents when Spring Break is coming to a close they hear the words “I don’t wanna go back. I don’t want to go to school.” Johnny got very emotional if we mentioned school and would yell “no” but who knew the emotions and anxieties of returning to his school routine would…