What You See Is What You Get 

          If you are coping are you learning?  So if you are  just sitting in class “attending” to the teacher which means eyes on the teacher,  body facing the teacher,  hands on desk,  feet on floor,  quiet hands,  and appearing to be listening does that mean you are learning?    When…

Pumpkin Patch Treasure Re-dux

  Somethings never change and Johnny’s love for pumpkins other then orange still has not.    Johnny  might say that he doesn’t like the word different but instead of picking orange pumpkins at the pumpkin patch,  he has to be on the lookout for the only green one.  He is a little boy on a mission….

She Ignored Me

At the beginning of October Johnny got into a last minute spot into a Social Skills Friendship building group for Autistic children 8-9 years old.  Having friends is a big thing for Johnny so he was eager to do this.   We thought it was important because initiating conversations with his peers seems to be…

Reading the Social Cues

“I don’t think she understands me Mommy.” That was the beginning of an unexpected conversation last night.  Johnny has some friends at school that he’ll play with when he wants to play and usually most of them are girls. So immediately he had my attention when I heard this because of the fact that he was…

Speech Therapist Surprise

    Today I’m speechless.  A speech pathologist from the school board who has accompanied some of my son’s regular Autism SLP visit a number of times commented about how incredible he’s doing and she how she can’t get over the leap he’s made with regards to speech. I am very happy about this but at…

He’s got skills or is it the girl?

Yesterday while I was waiting to pick up Johnny  from school I hung out at the back of the classroom.  One of the Education Assistants wanted to share with me how amazing Johnny was today.  There was a Grade 1 student who visited the ASD classroom to see if it was the right fit for her…

Showing What You Know

Every year I have to attend an official placement review committee (IPRC) meeting regarding Johnny’s status in special education.  Lots of good things were discussed but one thing really bothered me.  I was told that Johnny’s reading level is at around mid-Grade 1 level even though he’s in Grade 3.  I wanted to remind teachers…

When I Just Wanted To Play Has Many More Meanings

That in a nutshell is how we help Johnny to move forward and for us as parents to be able to handle any challenges as we all move forward as a family.  We accept that he learns differently and sees the world from a different perspective and if we want to help him forward we…

The Boy On The Bus and His Mom Pt 4/4

  So it would have to happen that we would meet. It was an extremely cold night for the parent teacher conferences so I was happy to wait inside for my husband to arrive.  One of the EA’s that I know that works in the Multiple Exceptionality room spots me waiting in the hall.  “Do you…

When Was He Ready? Does He Ever Get To Be Just A Child?

  When was he ready?  That is one of the questions I get asked often from people who have known Johnny for a long time or from others who have heard of the progress he has made.  I like to think that all children develop at their own pace and that any developmental guidelines are…

The Boy, The Bus and Me ~ Pt 3/4

A few weeks ago….. After writing a note to the Principal letting her know what amazing stuff was happening on the bus, I keep having the staff that work in the multiple exceptionality room (special resource or special needs classroom) come up and speak with me.  Yesterday when we were taking Johnny’s class to the…

More Boy On the Bus ~ Pt 2/4

Previously on “The Boy On the Bus,”….. Another morning getting on the school bus and another bright spot to start the day.  Johnny got on the bus first like he always does and greets his buddy Michael and heads to his seat.  But this morning,  John decided to reach out and grab my daughter Princess’s hand…

The Boy On the Bus ~ Pt 1/4

At the beginning of January after Christmas holidays,  an amazing thing happened on the morning school bus that I want to share. Its a story about never giving up on hope,  that all kids move forward and progress in their own way.  The following tale is very different from what happened 2 years ago on…

Thinking About the Sibling of an Autistic Child

The other day I was reading a blog post about a Mom’s very legitimate concerns about what Autism brings to the sibling of an Autistic  child.  I truly understood where she was coming from because it’s one thing as parents that we have the  responsibility for our children but what about siblings to each other?…

It Wasn’t What I Thought I Was Going To Be

  The day after my birthday and I have been left with a lot to think about.  I had lots of wonderful birthday wishes from friends and family from far and wide and local.  My husband decorated, got me much appreciated thoughtful gifts, lovely special cupcakes from the bakery, as a family we all went…

Its Like Christmas Lights….

  One of the ways I try to understand the the neurological side of Autism is I think of Johnny’s brain having more wiring in his brain that has been activated then what is typical and it hasn’t naturally trimmed itself to just use essential parts.  The end result is that it was hard for…

When Everyone Is Not On Board

An early childhood educator told me this one very particularly frustrating day: “There are going to be well meaning professionals in your son’s life that will help him move forward and others who will only hold him back if you let them.   My advice to you is to keep the ones who “get” Johnny…

What’s in a name?

  What’s in a name? that which we call a rose By any other name would smell as sweet; So Romeo would, were he not Romeo call’d, Retain that dear perfection which he owes Without that title. Romeo, doff thy name; And for that name, which is no part of thee, Take all myself.  Rom.        I…

The Mountain Just Got Higher

  I am sad right now.  I am feeling discouraged right now.  The mountain is always in front of us but we climb anyway.  Advocacy for access to the curriculum despite a disability as a human right continues for our son.  We chip away and stand our ground as our son due to his own determination…

Ash Wednesday And The Little Boy Who Could

  One afternoon, four weeks ago, I get a text from Johnny’s EA (Educational Assistant) “Johnny wants to read this on February 18th for Ash Wednesday in front of the school, can you practice with him till he has it down to a fine art please?” I am a tad shocked and quickly text her back and…

Celebrating Completing 100 Days of School

“When I Am A Hundred Years Old” I head into the school for another “Parent Teacher’s Night” to discuss Johnny and Princess’s recent report cards and their progress.  I am a few minutes early for the first teacher, so I stand outside the classroom and see if I can find any of Johnny’s Grade 2 work displayed…

He’s Never Been Shy

Psst…I have a little secret I’d like to share with you.  Johnny has never been a shy little boy.  Our nick name for him  is “Rock Star” because he loves to be the centre of attention.  Why were people assuming he was shy because he would not speak to them? When your child doesn’t say…

Cuddles and Pancakes

It’s Sunday, I gaze outside and we have had more snow. Do I take Johnny to Mass (church) ? I can hear the kids waking up and giggling about what stuffed animals to bring into our bedroom and who will be first. I can’t help but smile and cherish this time. Hearing Johnny tease his…

It Happened On The Bus….again

  *Something I should have posted last Spring when Johnny was still in Grade 1* Last week there was an unexpected incident on my son’s school bus. I thought I would write about it on my blog just to share the experience of what happens when another child who is Autistic is having a hard…

Just Like The Grade 2’s

  I hear the sound of laughter and excitement and the front doors of the school open and child after child follows their teacher outside for recess.  I hold my breathe and as promised,  I see him scampering threw the front doors of the school just like all the other grade twos ahead of him….

Just Help Him With Boots…please!!!

Two weeks ago I had that awkward moment when my child comes off the school bus and he’s not dressed appropriately.  It’s absolute torrential rain outside, the wind is blowing, it’s busy, other kids are trying to get off the bus along with other children coming from other schools are crowding the sidewalk.  I look up through my water drenched…

A Pile Of Leaves

  I saw a big pile of leaves that just beckoned to the kids to run and jump in.  It was Mother Nature’s version of a giant ball pit playroom that is in every Ikea.  Johnny was having a challenging time after a very busy week and we thought what a great opportunity to throw…

Its All About the Hazelnuts

It was a crisp Fall Sunday morning and we optimistically thought it would be nice to visit this big city park that we had not been to with the kids since they were babies and have them wander around in the fresh air, hike through the woods,  find the big pond,  see the ducks,  pick up lots of beautiful…

Poppies

  As far back as I can remember Johnny has been fascinated by the tradition of wearing “poppies” once a year on our coats to honour Remembrance Day.  Is it the colour?  Is it because its a predictable tradition that comes again each year like clock work?  He started learning about it when he was…

Adamant About Math

I received an email from Johnny’s Special Education teacher yesterday who teaches him in the Autism ISP room. “Yesterday for Math,  Johnny was ADAMANT that he wanted to stay in Mrs. ********’s class for Math.  Her and I looked at each other and she said to Johnny that if he was quiet, listened and participated he…