Speech Therapist Surprise

    Today I’m speechless.  A speech pathologist from the school board who has accompanied some of my son’s regular Autism SLP visit a number of times commented about how incredible he’s doing and she how she can’t get over the leap he’s made with regards to speech. I am very happy about this but at…

Pearls of Wisdom

    “We all need people in our lives who raise our standards, remind us of our essential purpose, and challenge us to become the best version of ourselves.”    I think that some of the best advice and news about different programs that I didn’t have any idea about have come from random moments,…

IBI Therapy ~ To Be or Not to Be Redux

“I am happy and proud of his progress but disappointed in a system that makes promises about early childhood intervention but has children on wait lists for the therapy and programs that can help him.  ” … Source: IBI Therapy ~ To Be or Not to Be I wrote this 4 years ago after my…

How Do You Know If I Can Read?  REDUX

  or….The Argument For More Motor Speech Therapy.   Last year when Johnny was in Grade 2,  I wrote about how important it was for him to get more specialized speech therapy so that he can learn to read orally. How could he sound out letters orally if his motor speech delay literally made it…

When Everyone Is Not On Board

An early childhood educator told me this one very particularly frustrating day: “There are going to be well meaning professionals in your son’s life that will help him move forward and others who will only hold him back if you let them.   My advice to you is to keep the ones who “get” Johnny…

Past Triumphs….Let The Words Begin

  Some children who are Autistic are verbal and others never become speakers.  This is one of the harder parts of being a parent raising a child on the spectrum.  As parents, we need to be able to communicate to our child as we raise them so being told during a diagnosis that your child…

Autism Spectrum Disorder…What Happens Now?

re-post from my blog about what happened to us as parents when we received the diagnosis for our son and then the plan of actions we needed to come up with to help him.  Repost: http://wp.me/p1KVmo-c Originally written on January 11 2011~ It’s funny how in life how three little words can change your life forever. “I love you” “It’s…

Its Simple Just Comment And…..Wait!

Johnny is speaking very differently in different situations and depending on who he is with.  When Johnny is comfortable he speaks in complex sentences, often starts a conversation, and speaks clearly enough to be understood much of the time.  When he’s uncomfortable like in when he’s with his peers or in the classroom, he becomes  very quiet,…

If You Can’t Talk Do You Understand? If You Don’t Talk….

  Is speaking words by using your mouth a true measure of our  level of understanding?  If we have challenges doing oral reading does it mean we cannot read?  If we only answer questions with yes or no responses or with three word sentences does it mean we are not capable of more?  If it takes…

There Was A Boy On The Metro….

  We were riding the metro back one night when my eyes caught something in the reflection in the glass.  A boy, no a young man sitting with head phones on.   This is a usual site on a subway train or a public bus so why would this catch my eye? The young man is…

Looking Back At Speech Therapy

  I’ve been reading about other parent’s journeys with their children and navigating the system to access help for their child who they suspect has developmental delays.   I became reflective about the beginnings of our journey with Johnny.   Looking back at when Johnny was assessed for his speech delay at 2-1/2 he was not a happy…

What We Did In The Kindergarten Years

A few weeks ago I was asked to be part of a workshop for parents of special needs children specifically Autism regarding the transition from preschool to kindergarden at Johnny’s former preschool.  I wrote about it here http://wp.me/p1KVmo-1xT  and here http://wp.me/p1KVmo-1y5 I’ve had a few questions over the last 2 years about this on my blog…

What Changed? It Was More Than Words ….

When Johnny was 3-1/2 and was diagnosed with Autism Spectrum Disorder, he began to start to say a few words again. We were very excited but after two blocks of 10 weeks of speech therapy provided by community health we felt like Johnny was at a stand still. The SLP’s meant well and were trying…

Let the words begin….

Originally posted on Everything Under the Sun:
One year ago today Johnny began using words again when he requested what he wanted. At around 16 to 18 months Johnny lost any language he had learned and only used grunts and pointing to communicate. Imagine hearing your child say “Mama” “Da Da” at the typical times of…

Johnny has come a long way….

Originally posted on Everything Under the Sun:
  ~ originally written August 2011 It’s been a long time since I wrote an update on our journey with Johnny. Special Pre-school: Johnny really enjoyed his time at the preschool we sent him to. They had volunteers working with him one on one everyday in a happy,…

Two Years Ago

Originally posted on Everything Under the Sun:
Originally written on January 11 2011~ It’s funny how in life how three little words can change your life forever. “I love you” “It’s a boy!” or “Autism Spectrum Disorder”. We received the diagnosis last Tuesday and our lives have been a whirlwind ever since. Why did this…

Stuttering

It began at the end of November suddenly and caught me off guard. It was like he was stuck in a sentence and could not get the rest of it out. I had heard him say it before? Right? Johnny went through a period of stuttering or as the professionals call it is having dysfluencies…

There is no such thing as can’t.

  There is no such thing as can’t only won’t. That is what I grew up hearing from my Dad whenever something happened that frustrated me or someone said that I couldn’t do something that I wanted to do. I get a call today from the OT Consultant for the school board who is filling…

Speech Therapy and Progress for Apraxia

We have now completed our fourth session of PROMPT therapy and Johnny is now able to really close his mouth on the final consonant of a word. Before he could say the vowels and miss the first letter of a word or he would not finish saying a word completely because he didn’t completely close…

“It’s Hard” – Speech Therapy and PROMPT

We were in the middle of our third Prompt Speech Therapy session when Johnny started tearing up and quickly rubbing his hand fast across his eyes to hide or stop the tears. “Why are you crying love?” Daddy. “But Daddy is okay and is only at work. What is really bothering you?” Johnny climbs into…

Apraxia of Speech Therapy – PROMPT

A few weeks ago we got a call from a clinic that treats Apraxia of Speech in children that Johnny was now at the top of their very long waiting list and that we should bring him in for another assessment.  What a difference three months can make from our previous visit.  Read about the…

First Foray into ABA

Johnny is now in 2 weeks of Group ABA Therapy for Communication (Applied Behaviour Analysis Therapy) . ABA is the primary way to teach people with Autism. He’s never worked directly with a psychologist and therapists trained in this but he is enjoying himself. I know the therapist from taking other courses so its kind…

On Vacation

      We are on vacation! We decided it was time for our family to take a break, pull the plug on all our routines, school (year ends here on June28) work and just have some together time as a family. We decided to take a road trip to a place by the ocean…

IBI Therapy ~ To Be or Not to Be

When we received Johnny’s diagnosis of “moderate to severe” Classical Autism Spectrum Disorder he was placed on the wait list to receive the government funded IBI Therapy. First Johnny had to be assessed whether he was a good candidate for the program which sadly we knew had a 2 year wait list. Last March we met Psychologists…

Ever have one of those days?

Ever have those days (or week) where so much has been happening both good and challenging that you don’t know where to start because you are mentally and emotionally exhausted? So here is a quick update on how we are doing and while I collect all my thoughts and assemble them into blog posts:) My…

No Time To Waste ~ Creating His Own Speech Lesson Routine

Johnny is so determined to practice speech that he has created his own routine.   Every morning after breakfast, after his snack after school, and before or after dinner he needs to practice learning how to say words. We have this Baby Einstein book called Baby’s First 100 Words which I have used with him to…

Autism In Big Flashing Neon Letters

  Some days are just plain disappointing.  You know the days when you can see your child really fighting to keep some of the Autism symptoms at bay but he is  fighting a losing battle.  It always seems to be the day when you want someone to see your child for who they are and…

Apraxia of Speech Is The Answer

Children with Autism do learn to communicate but not all will be able to learn to speak.  Some children with Autism learn to speak by memorizing phrases and scripts of shows or movies and then repeating them over and over without understanding what they are really saying ~ this is called Echolalia.  Sometimes the cold…