The Best People….

One of the best things have happened to me and my family because of Autism is the people we have met along the way. Often my husband and I will remark at how blessed we are that we have some incredible folks in our life that instantly “get” what we go through. Since my little…

Hiding Autism

    What if you were afraid to let anyone know that your child has Autism?  What if the family doctor says:   “He can speak, he can read really well, he is very smart and intelligent but just flops and has some social skill and sensory issues but otherwise no one would really know…

I Am An Actress

I am an actress.  I never set out to being one.   I somehow fell into it.  It was a way to protect myself,  my family, and most especially my son.   My Autistic son who for half of his life was nonverbal.  How is Johnny doing? I think that when you are a parent of…

Meaningful Learning

    The beginning of another school year means preparing for IEP’s again so that Johnny can have a successful year of learning.    We have to think about what that will look like for Johnny and how do we advocate for his needs.   As he goes through the “Grade levels”  in school my…

Turtle Trouble

“My turtle is not working.  Fix it Daddy.” Its 1:30am in the middle of the night and Johnny is in our room.  Like most parents the first thing that comes to our minds as parents is he’s having a nightmare or he’s feeling sick. Our minds race as we try to come out of a…

Mother

  When I look over and see Johnny with a big smile on his face and laughing about something I think of “her.”   When Princess stops and looks at flowers at the neighbourhood corner store I think of “her” showing me how to plant flowers in the flower beds with “her.”   When Johnny…

When I Just Wanted To Play Has Many More Meanings

That in a nutshell is how we help Johnny to move forward and for us as parents to be able to handle any challenges as we all move forward as a family.  We accept that he learns differently and sees the world from a different perspective and if we want to help him forward we…

More Boy On the Bus ~ Pt 2/4

Previously on “The Boy On the Bus,”….. Another morning getting on the school bus and another bright spot to start the day.  Johnny got on the bus first like he always does and greets his buddy Michael and heads to his seat.  But this morning,  John decided to reach out and grab my daughter Princess’s hand…

The Boy On the Bus ~ Pt 1/4

At the beginning of January after Christmas holidays,  an amazing thing happened on the morning school bus that I want to share. Its a story about never giving up on hope,  that all kids move forward and progress in their own way.  The following tale is very different from what happened 2 years ago on…

Thinking About the Sibling of an Autistic Child

The other day I was reading a blog post about a Mom’s very legitimate concerns about what Autism brings to the sibling of an Autistic  child.  I truly understood where she was coming from because it’s one thing as parents that we have the  responsibility for our children but what about siblings to each other?…

It Wasn’t What I Thought I Was Going To Be

  The day after my birthday and I have been left with a lot to think about.  I had lots of wonderful birthday wishes from friends and family from far and wide and local.  My husband decorated, got me much appreciated thoughtful gifts, lovely special cupcakes from the bakery, as a family we all went…

What Do You Feel Like? 

After the big Christmas school concert, we were collecting the kids and saying our good byes.  Johnny’s teachers and EA’s were there and getting him organized to go.  Johnny wanted to know what we were doing now and I said we needed to get some dinner for Daddy because he came straight from work to…

Social Communication Gap

When I started this journey with Johnny and Autism,  I was so wrapped up in the whole getting him to talk and to play with toys “properly”  that I think I put the social communication piece on the back burner.  I think I felt that if we could get talking started then the interactions would start….

Its Like Christmas Lights….

  One of the ways I try to understand the the neurological side of Autism is I think of Johnny’s brain having more wiring in his brain that has been activated then what is typical and it hasn’t naturally trimmed itself to just use essential parts.  The end result is that it was hard for…

When Everyone Is Not On Board

An early childhood educator told me this one very particularly frustrating day: “There are going to be well meaning professionals in your son’s life that will help him move forward and others who will only hold him back if you let them.   My advice to you is to keep the ones who “get” Johnny…

Visual Memory and His Love of Giverny

For Autism Awareness Month, I wanted to share a story regarding Johnny being a visual learner and his incredible memory. The other day I saw some pictures on Twitter of Monet’s famous water lily paintings and Johnny was looking over my shoulder and said, “Mommy that’s Giverny.” I asked him, “Who painted those?” and he answered “Monet…

Past Triumphs….Let The Words Begin

  Some children who are Autistic are verbal and others never become speakers.  This is one of the harder parts of being a parent raising a child on the spectrum.  As parents, we need to be able to communicate to our child as we raise them so being told during a diagnosis that your child…

Being A Toddler and Autism… “Step Into My Shoes”

  Its another day in Autism Awareness Month and I thought I’d share a post from that I’ve reblogged about Tantrums vs Meltdowns and how we experience it as a family.  When I look at the stats page on WordPress, the most often search for terms that brings people to my blog is meltdowns and…

Autism Symptoms Now….four years later.

Johnny is 7-1/2 years old now and we cannot believe that 4 years have passed already.  So many hours of speech therapy, OT therapy and then attending parent training courses as well.  I want to make it clear that my son will always be Autistic and as parents we have come to accept that.  So when…

Autism Spectrum Disorder…What Happens Now?

re-post from my blog about what happened to us as parents when we received the diagnosis for our son and then the plan of actions we needed to come up with to help him.  Repost: http://wp.me/p1KVmo-c Originally written on January 11 2011~ It’s funny how in life how three little words can change your life forever. “I love you” “It’s…

Flashback 4 Years…Autism Symptoms Then

Since its  officially Autism Awareness month and there might be parents reading my blog who are either beginning their journey raising an Autistic child or they are curious and want more information, I thought I’d share this resource material.  Just like every child is born different and are individuals, its is the same for people that…

He was there even when I was not sure he was

  It’s World Autism Awareness Day and this is Autism and acceptance to me and my family I confess that there were times I was not sure if my Autistic child understood what was happening?  When a child is non-verbal and isn’t acting the expected way that a child would about something,  many times there is…

World Autism Awareness Day

Originally posted on Everything Under the Sun:
Awareness + Understanding = Acceptance and Celebration My Mother n’law says you hear about Autism all the time now on the radio talk shows and in the news.  I agree it feels like there is a lot of awareness around now about Autism.  I have to admit that…

The Winter Woods

  Above is a painting done by my son Johnny that he calls, “The Winter Woods.”  He has painted the stark, barren trees reflecting in the water of the frozen pond.  It is a reminder of the days we leave behind as Spring arrives.  He painted this the day we learned of the tragic loss of…

The Mountain Just Got Higher

  I am sad right now.  I am feeling discouraged right now.  The mountain is always in front of us but we climb anyway.  Advocacy for access to the curriculum despite a disability as a human right continues for our son.  We chip away and stand our ground as our son due to his own determination…

Its All About The Cat

“I don’t want the cat sleeping on Mommy’s bed.  I don’t want the cat watching me get on the school bus.  I don’t want the cat going outside.  I don’t want the cat sleeping on my sister’s bed.   I don’t want the cat to go outside and go hunting.  I don’t want the cat…

Celebrating Completing 100 Days of School

“When I Am A Hundred Years Old” I head into the school for another “Parent Teacher’s Night” to discuss Johnny and Princess’s recent report cards and their progress.  I am a few minutes early for the first teacher, so I stand outside the classroom and see if I can find any of Johnny’s Grade 2 work displayed…

He’s Never Been Shy

Psst…I have a little secret I’d like to share with you.  Johnny has never been a shy little boy.  Our nick name for him  is “Rock Star” because he loves to be the centre of attention.  Why were people assuming he was shy because he would not speak to them? When your child doesn’t say…

Cuddles and Pancakes

It’s Sunday, I gaze outside and we have had more snow. Do I take Johnny to Mass (church) ? I can hear the kids waking up and giggling about what stuffed animals to bring into our bedroom and who will be first. I can’t help but smile and cherish this time. Hearing Johnny tease his…

Clips Are The Answer

***Update:  It was cold on Friday and when Johnny got off the bus and his coat was not zipped up, he didn’t have his hat on and his gloves were not on him.  His EA (Education Assistant or Para Support) was away at a funeral and he had a substitute.  I asked him where his…