After All Is A Name Important?

  It bothers me that Johnny never had a say in what he should be called at school.  I was told in Johnny’s Junior Kindergarten year that John was easier for him to learn to say, to spell, and for his peers to say but it won’t stick.  I was very uncomfortable with this but I…

Showing What You Know

Every year I have to attend an official placement review committee (IPRC) meeting regarding Johnny’s status in special education.  Lots of good things were discussed but one thing really bothered me.  I was told that Johnny’s reading level is at around mid-Grade 1 level even though he’s in Grade 3.  I wanted to remind teachers…

What’s in a name?

  What’s in a name? that which we call a rose By any other name would smell as sweet; So Romeo would, were he not Romeo call’d, Retain that dear perfection which he owes Without that title. Romeo, doff thy name; And for that name, which is no part of thee, Take all myself.  Rom.        I…

The Reflector

“Mommy I want the orange reflector.  Mommy will find it.” I stopped and had that moment of panic inside where I have heard what he said but I have no idea what he is referring to.  I do not want to frustrate Johnny so hence the panic because I can tell this is important to…

Why I bought him a Cinderella doll

It started with Johnny checking out his sisters’s Disney Princess castle. It was pink like a lot of things for little girls but it has a “cause-and-effect” piece where you put the Princess Cinderella or Snow White into the slot and she talks or sings a song.  After hearing what happens Johnny did this over…

Let the words begin….

Originally posted on Everything Under the Sun:
One year ago today Johnny began using words again when he requested what he wanted. At around 16 to 18 months Johnny lost any language he had learned and only used grunts and pointing to communicate. Imagine hearing your child say “Mama” “Da Da” at the typical times of…

Communication Goes “Both” Ways

When Johnny first started going to Junior Kindergarten I wrote about the “communication gap” that happens between the classroom experience and home here:  https://sunflowercyn.wordpress.com/2011/10/26/what-id-like-to-hear-the-most/  What do you do when you have a child who is essentially non-verbal but who communicates with gestures, some sign language,  and some word approximations and you want to know about…

What I’d like to hear the most

Originally posted on Everything Under the Sun:
What did you do at school today? Did you have fun? What made you laugh? What did you not like? Who are you friends with? Why are you sad when I ask this question? We always feel like we are starving for any scraps of info about what…

Joint Attention Is The Golden Nugget

“Joint attention is the shared focus of two individuals on an object. It is achieved when one individual alerts another to an object by means of eye-gazing, pointing or other verbal or non-verbal indications. An individual gazes at another individual, points to an object and then returns their gaze to the individual.” What if your…

Just Being There

We recently celebrated Johnny’s Daddy’s birthday and the family were gathering for his birthday dinner at an authentic Italian pizzeria with a wood burning oven. It is a new place that we haven’t been to before so lots of distractions and new things to intrigue and fascinate Johnny. Chandeliers made out of stainless steel pot…

It’s Time To Speak Up

On Friday morning, Johnny’s Daddy wrote a letter of concern to the Manager in charge of transportation at the school district and copied it to the Principal and Johnny’s school Autism team. i thought i would share an excerpt from it here on my blog to encourage other parents to follow their instincts and express…

It Happened On The Bus

“There was a spitting incident on the bus” *Yesterday* I cringed and my heart sunk as I thought we have gone so long without any incidents on any of the bus routes. Actually we haven’t had anything happen this school year at all and its March now and Johnny is on at least three different…

Tackling and Wrestling Spelling

Johnny has started to tackle spelling at school but we have run into some bumps. He is very eager to learn to read, spell and write but the combination of Autism, sensory, and Apraxia of Speech together challenge everyone working with him to find other ways to teach him and find other ways for him…

Elbow Juice

Johnny was 3-1/2 when he was diagnosed with Autism and a week before he went in for his developmental assessment he began to start saying some words again.  He gave us the best Christmas gift ever on Christmas Eve and Christmas Day when he said Mama, Dada, orange, juice, and his favourite part of the…

Why Are You Crying?

Why are you crying?  Why are you sad? I see tears and when we have tears it means we are sad.  Who made you sad?  Did somebody make you sad? Did somebody hurt your feelings?  What is it sweetie? Was it a girl or a boy that made you sad?  Please try and use your…

Christmas Lights and Plugs

*Painting Christmas Lights* Johnny has always loved looking at Christmas lights. He loves the colours, the glow, the sparkle, the twinkles and the shininess of them. He likes the way they change when they are are off and then when they are turned on again. He likes to watch us bring out the strings and…

The Green Room

Johnny sat down at the dinning room table much like any other evening and wanted to draw with his crayons. We didn’t know this night was going to be different. He went and got his “Goodnight Moon” book and opened it on the table and showed his Daddy he was going to draw “this page.”…

Tomato Soup

Today we learned about the motivational power of a little girl:) What do you want for lunch today? A jam sandwich, humous and pita, or wait, what about chicken noodle soup? “Soup Mommy.” Okay I’ll make noodle soup but its chicken noodle soup and I’ll fish the vegetables out. “No noodle soup.  No chicken.” But…

Shoes, Boots and Pumps….

My son has always liked to organize shoes.  He likes to line up shoes in a perfect line.  He likes to position them perfectly on the shoe rack and complains if someone put their shoes in the wrong spot even if they didn’t know there was a spot.  Is this Autism?  Is this the sign…

Speech Therapy and Progress for Apraxia

We have now completed our fourth session of PROMPT therapy and Johnny is now able to really close his mouth on the final consonant of a word. Before he could say the vowels and miss the first letter of a word or he would not finish saying a word completely because he didn’t completely close…

“It’s Hard” – Speech Therapy and PROMPT

We were in the middle of our third Prompt Speech Therapy session when Johnny started tearing up and quickly rubbing his hand fast across his eyes to hide or stop the tears. “Why are you crying love?” Daddy. “But Daddy is okay and is only at work. What is really bothering you?” Johnny climbs into…

No Time To Waste ~ Creating His Own Speech Lesson Routine

Johnny is so determined to practice speech that he has created his own routine.   Every morning after breakfast, after his snack after school, and before or after dinner he needs to practice learning how to say words. We have this Baby Einstein book called Baby’s First 100 Words which I have used with him to…

Autism In Big Flashing Neon Letters

  Some days are just plain disappointing.  You know the days when you can see your child really fighting to keep some of the Autism symptoms at bay but he is  fighting a losing battle.  It always seems to be the day when you want someone to see your child for who they are and…

Apraxia of Speech Is The Answer

Children with Autism do learn to communicate but not all will be able to learn to speak.  Some children with Autism learn to speak by memorizing phrases and scripts of shows or movies and then repeating them over and over without understanding what they are really saying ~ this is called Echolalia.  Sometimes the cold…

I am even more determined then ever…

  ~ “Johnny had an okay day. Johnny was very emotional, kept crying. Took him for walks and read him books which calmed him down for a bit” ~     This is what the EA wrote in Johnny’s daily communication book on Thursday about his morning at school. Wednesday night when we tucked Johnny in he was…

Let the words begin….

One year ago today Johnny began using words again when he requested what he wanted. At around 16 to 18 months Johnny lost any language he had learned and only used grunts and pointing to communicate. Imagine hearing your child say “Mama” “Da Da” at the typical times of development and one day it just stops….